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This page was last updated on 12/28/11. If you know of errors please click here to let us know.

Accord Alliance: In 2006, a consensus for a new paradigm of care for people diagnosed with "intersex" conditions was developed by 50 international experts and patient advocates. Accompanied by a change in nomenclature referring collectively to these conditions as disorders of sex development, or DSD. Accord Alliance's mission is to promote comprehensive and integrated approaches to care that enhance the health and well-being of people and families affected by DSD. http://www.accordalliance.org/

Note: Intersex Society of North America (ISNA) was devoted to systemic change to end shame, secrecy and unwanted genital surgeries for people born with anomaly of the reproductive system. They worked to end the idea that intersexuality is shameful or freakish. Because Accord Alliance (above) opened its doors in March, 2008 and will continue to lead national efforts to improve DSD-related health care and outcomes, ISNA closed its doors with the comfort and knowledge that its work will continue to have an impact. Archives of ISNA's historical documents and accomplishments will be preserved at the Kinsey Institute at Indiana University and the ISNA website will remain up as a historical artifact. http://isna.org/

Answers to Your Questions About Individuals with Intersex Conditions. A brochure from the Office of Public Communication, in collaboration with the American Psychological Association Task Force on Gender Identity, Gender Variance, and Intersex Conditions, answering basic questions about intersex and listing some of the available resources. At http://www.apa.org/topics/intersx.html.

Britain's UK Intersex Association: writings by intersex individuals and excellent links: http://www.ukia.co.uk/

Clinical Guidelines For The Management Of Disorders Of Sex Development In Childhood and Handbook for Parents. Invaluable tools regarding intersex. Copyright (c) 2006 Intersex Society of North America, March 25, 2006. Go to: http://www.dsdguidelines.org 

Intersex Initiative: articles, first person stories and a great Intersex FAQ page. Also, their speakers bureau serves Portland, Oregon; Metro Western Oregon & Washington along I-5; and the San Francisco Bay Area  http://www.ipdx.org/

Participation of Intersex Athletes in Women's Sports: This position statement from the Women's Sports Foundation is downloadable here: http://www.womenssportsfoundation.org/en/home/advocate/foundation-positions/lgbt-issues/intersex-athletes

A Path to Greater Understanding: This web page introduces you to ten people whose stories may surprise you. If you have always wondered what "transgender" and "intersex" meant, check this page out. If you have wondered whether there was a place in religious institutions for gender-different people, check this page out and consider ordering the booklet by the same name: http://www.madeinimage.org

What do children know? by Clara Jane Spalding: This is an important autobiographical page by a woman with a condition called "XY-Turner mosaic" who was mistakenly raised as a boy: http://www.obgyn.net/yw/articles/xyturner.htm 

What is Intersexuality? This resource was put together by PFLAG national for its local chapters, answering that question:  http://www.pflag.org/chapters/docs/tnt0501.PDF (pdf format)

Specific Intersex-related Sites:

AIS/DSD Support Group for Women and Families. Dedicated to helping women and children with AIS (Androgen Insensitivity Syndrome) and other DSDs (Disorders of Sex Development). A a network of hundreds of people whose lives have been touched by these diagnoses who invite your involvement in their efforts on support, education, and advocacy. http://www.aisdsd.org/

Turner Syndrome: http://www.tss.org.uk/

Cushing Syndrome: http://www.drdaiter.com/52.html

Mayer-Rokitansky-Kuster-Hauser Syndrome: http://www.surrogacy.com/online_support/mrkh

Congenital Adrenal Hyperplasia: http://www.tdh.state.tx.us/newborn/hand_cah.htm

Klinefelter Syndrome: http://www.nlm.nih.gov/medlineplus/klinefelterssyndrome.html

XY/XO mosaics and children with Gender Identity Disorder: http://www.xyxo.org/


As Nature Made Him: The Boy Who Was Raised as a Girl by John Colapinto

Complete Androgen Insensitivity Syndrome (CAIS): here (pdf format)
Introduction to Intersex Activism (2nd Ed.) by Emi Koyama, available ($5) here
Looking Queer edited by Dawn Atkins
Middlesex by Jeffrey Eugenides [fiction]
Sexing the Body: Gender Politics and the Construction of Sexuality by Anne Fausto-Sterling
Teaching Intersex Issues (2nd Ed.) by Emi Koyama, available ($5) here


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